Documental: La Vida Entre Tus Manos Diabetes Tipo 1


There are 3 main types of diabetes. Type 2 diabetes. 90% of people with diabetes
suffer from this type. Mainly affects adults
and is related to weight, obesity, sedentary lifestyle, diet, genes,
among other factors. It can be prevented. Gestational diabetes. Detected between
weeks 24 – 28 of pregnancy. Occasionally with proper treatment
it goes away after giving birth. However in some cases,
women develop type 2 diabetes. Type 1 diabetes.
An autoimmune disease. Not related to risk factors
such as weight, obesity or diet. Mainly affects children,
teenagers and young adults. It can’t be prevented. There’s no cure for any type of diabetes. Life in your hands
Type 1 Diabetes To me, having diabetes
is like trying to tame a fly. A fly that’s with you all the time, Bothering you and buzzing around,
never leaving you alone. It’s there constantly,
needing to be taken care of and it won’t let go
or give you a break. It feels just like that,
it’s something annoying. It’s a buzzing that’s there all the time,
but it’s not something I’m afraid of. Diabetes is like some kind of monster. Your first encounter with one is terrifying. You just want to turn around,
run away and avoid confrontation but then, one day,
after facing it so many times, you finally give it a name. It’s like putting your mask on… …and going out to fight
your way through the day. Metaphorically, I’d describe diabetes
as the waves of the sea. They can bring you peace and tranquility
when you know you’re going with the flow, you feel calm if you know you’re doing
what you’re supposed to do. But, it also frightens you… …if sometimes the sea gets too rough. The waves rise high and low and you don’t know what to do
to keep the sea calm and still. Diabetes is just like the sea,
it constantly moves and changes. It has ups and downs,
and you can learn how to surf in it. What happens to us
when we live with type 1 diabetes… …is that our body has lost
its capacity to regulate glucose. Glucose is our gasoline
and we need to keep it balanced. It can’t be either too high, because high blood sugar levels
can cause long term complications, or too low since we can’t function
with low glucose. So, what we do is learn
how to manually regulate it in our body. And, well, a big part
of the treatment for type 1 diabetes is done with insulin
used as basal insulin. We generally try to use
what’s known as insulin analogues. They work similarly to the insulin
produced by the human body, but with small differences
so we can get the help that we need. Then, we have prandial analogues or analogues of rapid
and ultra-rapid action, which are injected before every meal
to cover for what we eat and to keep the blood glucose levels
from getting too high. Type 1 diabetes happens in Mexico and it’s one of the most common
chronic diseases in children. The symptoms of type 1 diabetes
develop really fast. I felt my stomach really upset. I’d get up frequently at night
and drink a lot of water. Then I had to use the bathroom a lot
and afterwards I’d fall asleep. You should go to a health center
so they can test your glucose levels You shouldn’t waste any time, because, at the beginning, type 1 diabetes
has a really fast progression. She came in with 450 mg/dl,
which is insanely high. We just wanted Ana Lu to get better. We told ourselves it wasn’t a big deal
if she had diabetes, but we wanted to help her get through it,
because she was fainting. Your life, that was once normal,
has completely changed, and it affects the whole family dynamic. You live without being able to sleep, and that inevitably
adds a weight to everything. It has an effect on your emotional health. On how you react, maybe you’re tired
and not paying enough attention, even on the day-to-day issues. All the time you’re thinking
about type 1 diabetes. All the time. So there’s only a few moments
or a few minutes each day when you can give yourself
the luxury of not thinking about it, because, even while you´re sleeping,
you need to wake up and test your blood glucose levels. You end up forgetting important stuff,
like asking, how are you? How are you feeling this morning? Now it’s just,
how high is your blood sugar? You have your own life in your hands. Imagine that, with every choice you make,
especially over the use of insulin, you’re putting your life at risk, because it’s a drug
that does help save our lives, but it’s also really difficult
and dangerous to use. So, a little bit more or a little less
and you’re playing with fire. You need to know a lot about its effects
and what causes them. What did I do, what am I eating
and what I’m going to do. Do I have to be somewhere?
Am I going to walk or drive? You’re taking your life
in your hands every day. hoping that you’ve made the best choice
and adjusting your levels if you didn’t. It’s just like that,
having your own life in your hands. Just like that. There’s Rita! [child speaking] There are many things
you must watch out for, if you want to be a mother. Basically, you’ve to keep your glucose
like that of a woman without diabetes… [speaking to child] …around 6 months
before you plan on getting pregnant and throughout the whole pregnancy
so the baby has a normal development, and that’s it. It was indeed a big challenge, but, well, it’s worth every… …every glucose measurement
and I did it every time it was necessary. The time when insulin is injected must coincide with the time
that food is absorbed. And, although the genetic predisposition
of type 1 diabetes isn’t as high as with type 2 diabetes,
you have to ask yourself… …what would happen if my child
eventually develops diabetes? It’s something you need to consider
before you choose to become a mother. I decided that I’m really happy person, even with diabetes, so… …I enjoy living in this world, and I learned to manage diabetes,
so I know the risks that it involves. Living itself is a risk. [Mario Andre’s father]
Go for the goal! Goal from Mario André Corona González! Goal from number 21! Parents have the task
of supporting their children, offering wisdom, skills
and emotional support. The child isn’t responsible
of its management in the beginning. Don’t say “love”, because… …in this family,
we kiss each other all the time, right? From the first day,
the patient requires insulin injections. They’re required to have a meal plan. They’re also required to learn
how to prevent complications, such as hypoglycemia and ketoacidosis. And to keep adequate glycemic control, to reduce the risk of microvascular
and macrovascular complications that are responsible for disability
and premature death in children. So the diagnostic of type 1 diabetes is a huge shock for the family,
especially parents. A severe emotional blow,
because it’s about a disease that’s incurable right now. Yes, Leo is the one with diabetes
and he has to live with it… …but we do too. Like some people say, we’re living
with “diabetes of the heart”. If you’re worried or sad, or you’re on an
emotional roller coaster… …that’s going to have an effect
on the levels of glucose in your blood. So, it’s like an endless circle where you must handle
your emotional health perfectly to have your physical health in order… …it never ends. Living with type 1 diabetes
isn’t so black and white. The lifestyle of someone with diabetes
is really like that of any human being that takes care of their health. People don’t know that
there are different types of diabetes and they have forgotten
about type 1 diabetes because of the high number
of type 2 cases. Most people believe
that it’s related to lifestyle but that has nothing to do
with type 1 diabetes. We need to kill the stereotypes
or at least make them less widespread, If you have diabetes,
then that’s because you’re fat. If you have diabetes,
you’re going to die soon. If you have diabetes,
then you’re blind. If you have diabetes,
you must go to the doctor all the time. And, if you have diabetes… …then you’re weird
compared to everyone else. In general, there’s a big stigma
about this around the country and that can lead children
and teenagers with the diagnosis to feel uncomfortable
about taking their insulin to a concert, but they have to take it
because they need it to survive. [secretary on the phone] We tend to hide
that we live with type 1 diabetes precisely because of discrimination. Mexico’s main problem is that the condition represents
a catastrophic expense for the family. I’ve neither a formal job
nor an insurance that can pay for this, and the diabetes medication programs
are made to keep you buying, and it gets more expensive over time. There are many things we need to be well. We need test strips, glucometers, insulin,
needles, juices, honey, glucagon. There are many things needed
to lead a normal life every day. If we add up everything
Mario André needs, it’s around $10,000 pesos each month,
which is exclusively for these supplies. He also needs tests every three months,
along with medical appointments. Insulin companies
basically only think about money, not about the patient. It’s a really high expense
and, alongside that there’s also a tax on reactive strips
and glucometers. We have to pay a tax
for something we need to survive. When there are no resources,
the management turns into survival. The only goal is to increase
the patient’s survival for as long as possible. Sadly, we see that the health of Mexicans and children with type 1 diabetes, hasn’t been the priority
of any government here. We’ve had to fight
for them to have a complete treatment. International treaties say that the right
to healthcare is quite broad, and that you must have access
to the highest level of healthcare that you can have
in terms of effectiveness and stability, but the State in here
isn’t able to provide it. There’s a lot of classism
within the healthcare sector. It depends on which center you go to,
some even change the types of insulin, and this has been our essence
in our fight against discrimination, to put it in a nutshell. The insulin that they give you
is neither the correct type nor adequate, since it’s not the type
that should be used anymore, and they also give you insulin,
but not a glucometer or test strips. Right now, there’s nothing telling people
with children with type 1 diabetes that you have a right
to effective treatment in Mexico. Everyone knows it. The children themselves know
that they’ll die if they don’t get it. There’s now a lot of technology in Mexico. There are sensors
that you can wear in your arm It stays on there and you can scan it
to test your blood glucose level, and this lets you do
different activities easily. But, to have this sensor,
you need to have money. It’s the same problem. On the other hand… …how are you, as a patient,
going to know that it exists, if the doctor doesn’t tell you
or doesn’t even know about it? There’s a need for more information, in both the health system
and insurance companies, so that they know what is necessary and make sure it’s covered, and also think about it as an investment. We must influence a change
at a social and institutional level, so everyone can have access
and not just the few that I can help. The problem is neither the hospitals
nor the children that are in them; they’re very safe in there. But, how many children go to the hospital and stay for few days or weeks
due to some complication? The problem is about those outside. To start with, the law puts diabetes type 1, type 2
and gestational diabetes together as if they were all the same,
when we’re talking about three completely different things. We’d have to start
by making this separation, which we’ve already done
in the Senate and we’re now fighting
for this initiative to go through and implement the differentiation
of the three different types of diabetes in Article #158
of the General Health Law, but it’s a long way. We’re talking about three concepts so distinct from each other,
that even their names should be different. A few years ago, a new law about diabetes
came into effect in Mexico City, and in the two paragraphs
where type 1 diabetes is mentioned it says “everything possible to prevent
type 1 diabetes must be done”, along with taking each preventive measure,
when it can’t be prevented. That’s the level of ignorance, that it’s even written
into the law about diabetes. Two paragraphs about type 1 and one of them talks about prevention,
when it’s impossible to prevent. Since the ignorance runs so deep,
we have a lot of work to do. …I believe we need more teamwork and to combine our strength
and leave our egos aside. You need to raise your voice,
go out and do it on the streets, go to the Senate and Congress,
contact your representatives. These are your rights
and we should know how to demand them, which seems to be easier as a team. I’d tell the government… …to notice that we’re here,
and to understand that these are children. I believe there needs to be an effort
to create more awareness among the leaders of health programs, about the value of diabetes education. Diabetes education
is the foundation of its treatment, it’s not just part of the treatment. If you’re well informed,
you can make decisions. It’s that easy. I need 77 carbs by the morning,
which are three portions of cereal, one of fruit, one of dairy
and one of vegetables. I also need to take 20 units of “Lantus”, and 1 from “Lispro” now
for every 30 carbs, so just now I injected myself with 2. My diet used to consist of 62 carbs
and now it’s up to 77 carbs. I had to increase 15 carbs
during my meals, because with less my body
wouldn’t cope long enough with physical activity. Then we get an Uber or a taxi… …and get on our way to school. [Teacher talking to students] [students talking] I like doing exercise a lot
and I think it’s really fun. It’s better for your
glycosylated hemoglobin, so that’s why I like exercise so much. Currently, adequate diabetes education
is done through civil organizations, but the same information
should be provided in other places. I mean, I was lucky to find
the Mexican Diabetes Association and understand my condition better. I got the opportunity
to take care of myself in a different way. But, if I hadn’t ran into them,
who knows where I’d be today or how many people currently
don’t have the same support. For example, the work that’s being done
in the association is really good, precisely to raise awareness, and they also provide
a great environment for bonding. One where they can have unity. I think their participation in society
is really important, because they are the ones
who can stay in contact with the people that design the health programs of the population. Working here for me is a bit magical, in the sense that my work can help others to change their story,
their perception and their life. We make this a place of hope,
magic, motivation and empowerment, helping others face a dark place
filled with complications that can happen and may not be too far off from happening, if the self-care of type 1 diabetes
isn’t managed properly. I believe that in the future treatments
will be more effective and efficient, and will allow people
to live longer than they do now. I believe that, right now, the artificial pancreas
is what promises the most. We’re all very excited about it. That’s because it’s possible
to increase the time in range for glucose to be between
70 mg/dl and 180 mg/dl, and then we can try
to make this range shorter and keep it between
80 mg/dl and 130 mg/dl. I believe that,
if we can at least achieve this… …we can promise a much better future
for people living with type 1 diabetes. Of course, the biggest challenge
is that this reaches everyone. Take care of yourself,
it’ll be worth it when we find a cure. Because we don’t know how long
that’s going to take, if it ever does. But, if it does, then you’ll want
to be in an optimal situation, to have had the best treatment
and to be in top condition, so, if the cure comes,
you can make the best of it. ♪ Cada día que no te ven mis ojos ♪ ♪ Cada noche que no estás
junto a mí ♪ ♪ Cada milla, cada pie
que hay entre tú y yo ♪ ♪ Cada paso que doy ♪ ♪ Va en tu dirección ♪ ♪ Pero no sé ♪ ♪ Tal parece que ♪ ♪ Te siento más lejos cada día ♪ ♪ … ♪ We dedicate this project to all of us
that live with type 1 diabetes in Mexico. Our hope is that very soon this condition
will become visible to everyone. We urge the authorities
to prioritise diabetes type 1 in the National Agenda. Our deepest gratitude
goes to all the families that opened the doors
of their homes to us.

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